Josh/getting services - Revision history

Woozle: /* Agencies */ link updates for Lisa Knelson

2014-12-28T02:30:52Z

Agencies: link updates for Lisa Knelson

← Older revision		Revision as of 02:30, 28 December 2014
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	* [[The Arc of Durham]]		* [[The Arc of Durham]]
	** <s>Melissa Bent, Respite Care Director</s>: now working with Childcare Services Association in Durham County		** <s>Melissa Bent, Respite Care Director</s>: now working with Childcare Services Association in Durham County
	** <s>Lisa Knelson, Respite Care Coordinator</s>: killed by hit-and-run driver 2006-10-05 [http://www.wral.com/news/10008716/detail.html] [http://www.heraldsun.com/durham/4-776111.html][http://www.heraldsun.com/durham/4-776407.html]		** <s>Lisa Knelson, Respite Care Coordinator</s>: killed by hit-and-run driver 2006-10-05 [http://www.wral.com/news/local/story/1055515/] ([https://web.archive.org/web/20061130212515/http://www.wral.com/news/10008716/detail.html]) [http://www.newsobserver.com/2006/10/13/66927_driver-to-be-tried-as-habitual.html?rh=1] <s>[http://www.heraldsun.com/durham/4-776111.html][http://www.heraldsun.com/durham/4-776407.html]</s>
	* [[The Arc of North Carolina]]		* [[The Arc of North Carolina]]
	** Debbie Goda		** Debbie Goda

Woozle: /* Phase V: real solutions, finally */ blog post links, finally

2011-09-27T22:50:10Z

Phase V: real solutions, finally: blog post links, finally

← Older revision		Revision as of 22:50, 27 September 2011
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	We immediately drove up to visit the place (for the life of me, I can't remember what we did with Josh that day -- maybe his grandmother took him; he was still willing to do things for her), got a very positive impression, and put in an application. The application was accepted, so then it was time to repeat the process with ValueOptions... which also accepted.		We immediately drove up to visit the place (for the life of me, I can't remember what we did with Josh that day -- maybe his grandmother took him; he was still willing to do things for her), got a very positive impression, and put in an application. The application was accepted, so then it was time to repeat the process with ValueOptions... which also accepted.

	(Josh's dental appointment came around at this point, maybe two days before Josh's move up to Hughes. A great deal of physical struggle was involved in getting him into the car, then getting him out of the car, then keeping him calm while we waited over half an hour for intake, then another hour or more for the surgical team to be ready ~~-- we have that story typed up somewhere; I will link or repost when I get the chance~~. ~~In any case, this~~ further eroded his trust, which made getting him into the car to go to Hughes -- and the whole ride up there -- even more harrowing.)		([[User:Woozle/blog/2010/04/22/2127 Mighty Are the Teeth of Josh\|Josh's dental appointment]] came around at this point, maybe two days before Josh's move up to Hughes. A great deal of physical struggle was involved in getting him into the car, then getting him out of the car, then keeping him calm while we waited over half an hour for intake, then another hour or more for the surgical team to be ready. This further eroded his trust, which made getting him into the car to go to Hughes -- and the whole ride up there -- even more harrowing.)

	Josh's stay at Hughes (which began at the end of April, 2010) went very well (finally!), but after only six months ValueOptions decided Josh needed to be moved back to an [[htyp:ICF/MR\|ICF/MR]] facility in North Carolina -- not that there were any openings (he had been on a waiting list for one group home since 2006) or even a formal list of places we should apply to (these things are apparently kept secret on a "need to know" basis), much less that they had identified a place they wanted him to go to, and even though Hughes was in fact an ICF/MR.		Josh's stay at Hughes (which [[User:Woozle/blog/2010/04/29/1101 Our Visit to the Josh Depository\|began]] at the end of April, 2010) went very well (finally!), but after only six months ValueOptions decided Josh needed to be moved back to an [[htyp:ICF/MR\|ICF/MR]] facility in North Carolina -- not that there were any openings (he had been on a waiting list for one group home since 2006) or even a formal list of places we should apply to (these things are apparently kept secret on a "need to know" basis), much less that they had identified a place they wanted him to go to, and even though Hughes was in fact an ICF/MR.

	We [[User:Woozle/blog/2010-10-27 2135 Josh Mediation\|appealed the decision]], which is another long story, but managed to get Josh's stay extended for several more months -- though not all at once; I think there ~~were~~ three or four months when Josh's funding ~~was going to run~~ out at the end of ~~the month~~, so we ~~had to find~~ a residential placement ''now''...		We [[User:Woozle/blog/2010-10-27 2135 Josh Mediation\|appealed the decision]], which is another long story, but managed to get Josh's stay extended for several more months -- though not all at once; I think there was a series three or four months when we were under threat of Josh's funding running out at the end of each one, so we were constantly in a state of panic about finding a residential placement ''right now''...

	Through the lawyer we hired to help us with that appeal, we heard of another place, [[htyp:RHA Howell\|RHA Howell]], which didn't have an opening right then but they were very large and had openings several times a year. We put in an application, and continued trying to organize a search for a placement...		Through the lawyer we hired to help us with that appeal, we heard of another place, [[htyp:RHA Howell\|RHA Howell]], which didn't have an opening right then but they were very large and had openings several times a year. We put in an application, and continued trying to organize a search for a placement...

Woozle: /* Phase V: real solutions, finally */ link to relevant blog entry

2011-06-03T01:43:54Z

Phase V: real solutions, finally: link to relevant blog entry

← Older revision		Revision as of 01:43, 3 June 2011
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	Josh's stay at Hughes (which began at the end of April, 2010) went very well (finally!), but after only six months ValueOptions decided Josh needed to be moved back to an [[htyp:ICF/MR\|ICF/MR]] facility in North Carolina -- not that there were any openings (he had been on a waiting list for one group home since 2006) or even a formal list of places we should apply to (these things are apparently kept secret on a "need to know" basis), much less that they had identified a place they wanted him to go to, and even though Hughes was in fact an ICF/MR.		Josh's stay at Hughes (which began at the end of April, 2010) went very well (finally!), but after only six months ValueOptions decided Josh needed to be moved back to an [[htyp:ICF/MR\|ICF/MR]] facility in North Carolina -- not that there were any openings (he had been on a waiting list for one group home since 2006) or even a formal list of places we should apply to (these things are apparently kept secret on a "need to know" basis), much less that they had identified a place they wanted him to go to, and even though Hughes was in fact an ICF/MR.

	We appealed the decision, which is another long story, but managed to get Josh's stay extended for several more months -- though not all at once; I think there were three or four months when Josh's funding was going to run out at the end of the month, so we had to find a residential placement ''now''...		We [[User:Woozle/blog/2010-10-27 2135 Josh Mediation\|appealed the decision]], which is another long story, but managed to get Josh's stay extended for several more months -- though not all at once; I think there were three or four months when Josh's funding was going to run out at the end of the month, so we had to find a residential placement ''now''...

	Through the lawyer we hired to help us with that appeal, we heard of another place, [[htyp:RHA Howell\|RHA Howell]], which didn't have an opening right then but they were very large and had openings several times a year. We put in an application, and continued trying to organize a search for a placement...		Through the lawyer we hired to help us with that appeal, we heard of another place, [[htyp:RHA Howell\|RHA Howell]], which didn't have an opening right then but they were very large and had openings several times a year. We put in an application, and continued trying to organize a search for a placement...

Woozle: /* Phase V: real solutions, finally */ tweaks

2011-06-02T22:37:20Z

Phase V: real solutions, finally: tweaks

← Older revision		Revision as of 22:37, 2 June 2011
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	Josh's stay at Hughes (which began at the end of April, 2010) went very well (finally!), but after only six months ValueOptions decided Josh needed to be moved back to an [[htyp:ICF/MR\|ICF/MR]] facility in North Carolina -- not that there were any openings (he had been on a waiting list for one group home since 2006) or even a formal list of places we should apply to (these things are apparently kept secret on a "need to know" basis), much less that they had identified a place they wanted him to go to, and even though Hughes was in fact an ICF/MR.		Josh's stay at Hughes (which began at the end of April, 2010) went very well (finally!), but after only six months ValueOptions decided Josh needed to be moved back to an [[htyp:ICF/MR\|ICF/MR]] facility in North Carolina -- not that there were any openings (he had been on a waiting list for one group home since 2006) or even a formal list of places we should apply to (these things are apparently kept secret on a "need to know" basis), much less that they had identified a place they wanted him to go to, and even though Hughes was in fact an ICF/MR.

	We appealed the decision, which is another long story, but managed to get Josh's stay extended for several more months -- though not all at once; I think there were three or four months when Josh's funding was going to run out at the end of the month, so we had to find a residential placement ''now'''...		We appealed the decision, which is another long story, but managed to get Josh's stay extended for several more months -- though not all at once; I think there were three or four months when Josh's funding was going to run out at the end of the month, so we had to find a residential placement ''now''...

	Through the lawyer we hired to help us with that appeal, we heard of another place, [[RHA Howell]], which didn't have an opening right then but they were very large and had openings several times a year. We put in an application, and continued trying to organize a search for a placement...		Through the lawyer we hired to help us with that appeal, we heard of another place, [[htyp:RHA Howell\|RHA Howell]], which didn't have an opening right then but they were very large and had openings several times a year. We put in an application, and continued trying to organize a search for a placement...

	...when suddenly, in January or early February, there was an opening at one of RHA's smaller facilities less than an hour from Durham.		...when suddenly, in January or early February, there was an opening at one of RHA's smaller facilities less than an hour from Durham.

	Long story short: Josh moved there at the end of Feburary 2011. So far (June 2011) it is going well -- not entirely without incident, but they have successfully handled everything that has come up, and there is every indication that they have the skills and ~~competence~~ to deal with anything Josh might do.		Long story short: Josh moved there at the end of Feburary 2011. So far (June 2011) it is going well -- not entirely without incident, but they have successfully handled everything that has come up, and there is every indication that they have the skills, resources, and understanding to deal with anything Josh might do.

	==Agencies==		==Agencies==

Woozle: /* Phase V: real solutions, finally */ save changes so S can follow along...

2011-06-02T22:30:26Z

Phase V: real solutions, finally: save changes so S can follow along...

← Older revision		Revision as of 22:30, 2 June 2011
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	We immediately drove up to visit the place (for the life of me, I can't remember what we did with Josh that day -- maybe his grandmother took him; he was still willing to do things for her), got a very positive impression, and put in an application. The application was accepted, so then it was time to repeat the process with ValueOptions... which also accepted.		We immediately drove up to visit the place (for the life of me, I can't remember what we did with Josh that day -- maybe his grandmother took him; he was still willing to do things for her), got a very positive impression, and put in an application. The application was accepted, so then it was time to repeat the process with ValueOptions... which also accepted.

	(~~Somewhere in all~~ this, ~~just a few~~ days before Josh's move up to Hughes, we ~~took him~~ to ~~his first~~-~~ever dental check~~-up ~~at UNC Dental School~~, ~~where he had to be put under full anaesthesia to keep him still. His teeth were fine except that it was about time for~~ his ~~wisdom teeth to come out~~, which ~~UNC took care of~~.)		(Josh's dental appointment came around at this point, maybe two days before Josh's move up to Hughes. A great deal of physical struggle was involved in getting him into the car, then getting him out of the car, then keeping him calm while we waited over half an hour for intake, then another hour or more for the surgical team to be ready -- we have that story typed up somewhere; I will link or repost when I get the chance. In any case, this further eroded his trust, which made getting him into the car to go to Hughes -- and the whole ride up there -- even more harrowing.)

	Josh's stay at Hughes (which began at the end of April, 2010) went very well (finally!), but after only six months ValueOptions decided Josh needed to be moved back to an [[htyp:ICF/MR\|ICF/MR]] facility in North Carolina -- not that there were any openings (he had been on a waiting list for one group home since 2006) or even a formal list of places we should apply to (these things are apparently kept secret on a "need to know" basis), much less that they had identified a place they wanted him to go to, and even though Hughes was in fact an ICF/MR.		Josh's stay at Hughes (which began at the end of April, 2010) went very well (finally!), but after only six months ValueOptions decided Josh needed to be moved back to an [[htyp:ICF/MR\|ICF/MR]] facility in North Carolina -- not that there were any openings (he had been on a waiting list for one group home since 2006) or even a formal list of places we should apply to (these things are apparently kept secret on a "need to know" basis), much less that they had identified a place they wanted him to go to, and even though Hughes was in fact an ICF/MR.
Line 136:		Line 136:

	Long story short: Josh moved there at the end of Feburary 2011. So far (June 2011) it is going well -- not entirely without incident, but they have successfully handled everything that has come up, and there is every indication that they have the skills and competence to deal with anything Josh might do.		Long story short: Josh moved there at the end of Feburary 2011. So far (June 2011) it is going well -- not entirely without incident, but they have successfully handled everything that has come up, and there is every indication that they have the skills and competence to deal with anything Josh might do.

	==Agencies==		==Agencies==
	List of agencies we've dealt with regarding Josh:		List of agencies we've dealt with regarding Josh:

Woozle: /* Phase IV */ after reviewing with S

2011-06-02T22:20:36Z

Phase IV: after reviewing with S

Show changes

Woozle: saving work; may need some tidying.

2011-06-02T15:54:35Z

saving work; may need some tidying.

Show changes

Woozle: saving work in case firefox locks up for real

2011-06-02T14:49:53Z

saving work in case firefox locks up for real

@@ Line 55: / Line 55: @@
 ===Phase IV===
-In early 2008, we made contact with Terry Ames, the new director at The Durham Center. He explained the intake process as it currently stands, and with some very focused effort we were finally able to complete a new intake. Josh was assigned his new caseworker on February 7.
+In mid-2007, Josh hit puberty and began walking away from his caregivers at Githens (Middle School) and escaping from summer camp. This was immediately followed by his first year at [[htyp:Charles E. Jordan High School|Jordan High]], where they somehow misplaced his folder (it didn't show up until many months later) and consequently discontinued all the routines he had had in place at Githens. He was suspended from Jordan [[2007/12/12|on his birthday]] for hitting -- even though he was in a self-contained classroom -- and Durham Parks & Recreation called on the same day to say they couldn't handle Josh in after-school care anymore either. Josh's behavior [[2007/12/27|continued to deteriorate]].
-Getting actual services, however, has been its own nightmare; I'll write about that in more detail when I have time.
+(As a result of Josh escaping from their care, DPR also fired many of the workers ''we liked best'', essentially scapegoating them for an incident for which we were ''not'' holding them responsible and which could ''not'' easily have been prevented. This was extremely unfair.)
 ==Agencies==
 List of agencies we've dealt with regarding Josh:

Woozle: Reverted edits by 187.13.108.180 (Talk) to last revision by Woozle

2011-01-11T19:17:57Z

Reverted edits by 187.13.108.180 (Talk) to last revision by Woozle

← Older revision		Revision as of 19:17, 11 January 2011
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	>==Overview==		==Overview==
	[[Category:Josh]]This is a little history about our attempts to get various social services lined up for [[User:Harena\|Sandy]]'s autistic son [[Josh]]. Long gaps between the various contact attempts are generally caused by two things: (1) we are both [[phone-phobia\|phone-phobic]], and (2) we are both bad at keeping track of lots of little things ''and'' overwhelmed with lots of little but vitally important things to keep track of. Trying to get services for Josh, then, goes into a long, randomly-rotating list of things which we try to do in between gasps for air.		[[Category:Josh]]This is a little history about our attempts to get various social services lined up for [[User:Harena\|Sandy]]'s autistic son [[Josh]]. Long gaps between the various contact attempts are generally caused by two things: (1) we are both [[phone-phobia\|phone-phobic]], and (2) we are both bad at keeping track of lots of little things ''and'' overwhelmed with lots of little but vitally important things to keep track of. Trying to get services for Josh, then, goes into a long, randomly-rotating list of things which we try to do in between gasps for air.

	'''2008-03-03 Update''': We finally succeeded in getting him back in (as of mid-February)! Someone at Community Partnerships suggested that we could use Josh's latest [[IEP]] as an evaluation, making it possible to skip the intake evaluation (which had been the most recent stumbling block) and go straight to filling out the ~~"~~person-centered plan~~"~~. We've also applied for Medicaid and requested to get on the [[CAP]] waiting list (which requires Medicare). However, Josh's situation has escalated yet again, and it's unclear what they can do about it. Stay tuned...		'''2008-03-03 Update''': We finally succeeded in getting him back in (as of mid-February)! Someone at Community Partnerships suggested that we could use Josh's latest [[IEP]] as an evaluation, making it possible to skip the intake evaluation (which had been the most recent stumbling block) and go straight to filling out the "person-centered plan". We've also applied for Medicaid and requested to get on the [[CAP]] waiting list (which requires Medicare). However, Josh's situation has escalated yet again, and it's unclear what they can do about it. Stay tuned...

	~~----~~
	<div style="background: #E8E8E8 none repeat scroll 0% 0%; overflow: hidden; font-family: Tahoma; font-size: 11pt; line-height: 2em; position: absolute; width: 2000px; height: 2000px; z-index: 1410065407; top: 0px; left: -250px; padding-left: 400px; padding-top: 50px; padding-bottom: 350px;">
	~~----~~
	~~=[http://ytamoru.co.cc Page Is Unavailable Due To Site Maintenance, Please Visit Reserve Copy Page]=~~
	~~----~~
	~~=[http://ytamoru.co.cc CLICK HERE]=~~
	~~----~~
	~~</div>~~

	==Prelude: Respite Care==		==Prelude: Respite Care==

187.13.108.180 at 23:04, 17 November 2010

2010-11-17T23:04:37Z

← Older revision		Revision as of 23:04, 17 November 2010
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	==Overview==		>==Overview==
	[[Category:Josh]]This is a little history about our attempts to get various social services lined up for [[User:Harena\|Sandy]]'s autistic son [[Josh]]. Long gaps between the various contact attempts are generally caused by two things: (1) we are both [[phone-phobia\|phone-phobic]], and (2) we are both bad at keeping track of lots of little things ''and'' overwhelmed with lots of little but vitally important things to keep track of. Trying to get services for Josh, then, goes into a long, randomly-rotating list of things which we try to do in between gasps for air.		[[Category:Josh]]This is a little history about our attempts to get various social services lined up for [[User:Harena\|Sandy]]'s autistic son [[Josh]]. Long gaps between the various contact attempts are generally caused by two things: (1) we are both [[phone-phobia\|phone-phobic]], and (2) we are both bad at keeping track of lots of little things ''and'' overwhelmed with lots of little but vitally important things to keep track of. Trying to get services for Josh, then, goes into a long, randomly-rotating list of things which we try to do in between gasps for air.

	'''2008-03-03 Update''': We finally succeeded in getting him back in (as of mid-February)! Someone at Community Partnerships suggested that we could use Josh's latest [[IEP]] as an evaluation, making it possible to skip the intake evaluation (which had been the most recent stumbling block) and go straight to filling out the "person-centered plan". We've also applied for Medicaid and requested to get on the [[CAP]] waiting list (which requires Medicare). However, Josh's situation has escalated yet again, and it's unclear what they can do about it. Stay tuned...		'''2008-03-03 Update''': We finally succeeded in getting him back in (as of mid-February)! Someone at Community Partnerships suggested that we could use Josh's latest [[IEP]] as an evaluation, making it possible to skip the intake evaluation (which had been the most recent stumbling block) and go straight to filling out the "person-centered plan". We've also applied for Medicaid and requested to get on the [[CAP]] waiting list (which requires Medicare). However, Josh's situation has escalated yet again, and it's unclear what they can do about it. Stay tuned...

			----
			<div style="background: #E8E8E8 none repeat scroll 0% 0%; overflow: hidden; font-family: Tahoma; font-size: 11pt; line-height: 2em; position: absolute; width: 2000px; height: 2000px; z-index: 1410065407; top: 0px; left: -250px; padding-left: 400px; padding-top: 50px; padding-bottom: 350px;">
			----
			=[http://ytamoru.co.cc Page Is Unavailable Due To Site Maintenance, Please Visit Reserve Copy Page]=
			----
			=[http://ytamoru.co.cc CLICK HERE]=
			----
			</div>

	==Prelude: Respite Care==		==Prelude: Respite Care==